Diabetic Conclusion: my problem is the same as yours

For us diabetes amplifies everything; if you feel just-not-right then broken blood sugar will make it wrong, as alcohol does an alcoholic; every bone of contention, every pulse of ill will, slight upset or lull, every wave of exhaustion and misunderstanding all amplified.

Deformation of sadness, doubt, and dependency; symptoms lost in a bigger world, it leaves us wilting. We push on. Living with a profitable disease is a double-edged sword, sure they are going to make us new medicines every fifteen years once patents for the last have run out, and these on some level will spell vast improvement over previous. But it’s for us to direct and decide upon, which of
these medicines is suitable again in meeting with our state-of-being, not solely encapture the requirements of a mass Diabetes Industry’s profiteering. – It’s not such a bad situation to be
in; on a good day it’s not such a bad disease to have. Our health is readily manageable with the right communication: no miracle medicine in the world is going to work without precise communication. My problem is the same as yours: my solution the same as yours.

Before

At present I am lost, my character thin, my confidence gone, expectations
extinguished, soaked through with doubt, nurtured in worry, close to giving up entirely. I used to be better than this, I used to look the world dead in the eye and I thought I could stare down the sun, now the world’s gotten the better of me.
Responsibility for everything and it’s all too hard but I’m going to make myself better. Maybe it’s the time I find on my hands, or my current health status. This book just seems right.

After

Seventeen years of feeling like that fly, banging its head off the bar window. I’m a better person when my sugar is level. I’m nicer to be around. Content not frustrated. I do this because there is no other way. Please stay with me.

Now

Week four of being human and I have no intention of leaving this island. I crave new challenges I want to be involved. So this is what it feels like to be young? I don’t feel uncomfortable all the time anymore, I feel fresh and capable. I can’t remember feeling like this since I was a kid.
Clearing out the cobwebs and now to come to terms with having been ill for seventeen years.

Writing this book has made me realise how I see the world. Made me realise how high sugar has changed me. I’m actually quite a nice person.
I hope I’m nicer to be around and for me it’s great to see how lovely the people around me are. I don’t feel like everyone around me is having a go at me anymore. I don’t take everything to heart and no longer feel everything is a poor reflection on me.

Six months on

Every day is lovely, the trees show me how young I am, cool breeze refreshes me, water reflecting sky and I am privileged to walk around here in the company of all you beautiful souls. The smiles of others light me up and I know tears can be recovered from. It’s time to create some little ones, a George Victor, a Jack Stephen.

We should never and I will never again allow myself to feel guilty over being ill. I know I am doing everything I can to be healthy and that’s way beyond what most non-diabetics do.

Thanks for letting me get this off my chest. It’s true, it’s not good to keep it all bottled up inside.

Thank you,
Paul

Taken from ‘Getting better, state of mind (original notes).’

Diabetes is not an “en vogue” disease.

“Diabetes is not an “en vogue” disease.

It is not the kind of disease that gets a huge product campaign like breast cancer, nor is it portrayed as tragic and other worldly diseases like the AIDS epidemic in Africa. The public perception of diabetes is the polar opposite of the causes the media likes to promote. Instead of being seen as victims of illness, those millions living with diabetes are often seen as being lazy and unwilling to control their disease with a “simple” diet and exercise regimen. Paul Cathcart’s memoir stands to change that.

In writing “Persona Non Grata with Diabetes,” Cathcart opens the door a crack to shed some light on what it means to live with the disease. Beginning in the present, Cathcart starts at the end of his story, after years of testing, quick fixes, health scares, and doctor’s visits failed to manage his illness. But more than managing his illness, Cathcart seeks to the make others understand what it means to live with diabetes and see that it is a “state-of-being” as much as it is a physical problem, something those of us not conflicted with the illness fail to see.

With a quick wit and a sharp tongue, Cathcart weaves in and out of time to create a portrait of a young man trying to make it through life with the threat of his poor health looming in the background. He describes his childhood in Glasgow, Scotland growing up in a working class family with a single mom, who creates the picture that diabetes can and does happen to “normal,” everyday people. People that you went to school with, the first boy you kissed, or that friend with the great taste in music. The author has such a clear ear for dialogue and language that the reader can almost hear the words coming off of the page particularly when he describes his condition as “dying faster than I’m living.”

Throughout the memoir, Cathcart italicizes food items and restaurants such as “Rolo Ice Cream” and “Starbucks,” a technique used to signal the reader of how pervasive and accessible junk food is in Western culture. Seeing so many italicized words on the page is a frequent reminder to the reader of how hard it must be to be constantly reminded of everything you aren’t supposed to have as a healthy, fit person. For those of us not living with diabetes, it’s easy to take indulging in junk food for granted but it’s not life and death serious as it can be for a diabetic.

With the descriptions of his health scares and their adverse affect on his life, it would be easy to take Cathcart’s memoir as a sob story. But in-between the all too real descriptions of his illness, Cathcart keeps his humor and welcomes readers, both diabetic and non-diabetic, with the understanding that you don’t have to face life’s struggles alone. This book makes for an especially good read for those struggling with the sickness but it also serves as a good educational piece for those without.”

Tiffany Ezuma, Pacific Book Review, 27 November 2013

Diabetes: What If?

We bleed through this disease in more ways than one, but what if? And I’m not proposing some miracle cure, some hogwash alternative remedy beyond the honest diet and exercise. What I am proposing is purely theoretical – a fantasy or nightmare – what would you give up to stop the bleeding? Could you lose time to make time? And this is where it gets rather outlandish; her is the proposal; one year only (12 months, 365 non leap days) in a medically induced coma; where you lay there, sugar levels constantly monitored; fed and medicated through a drip; nothing fancy, nothing technical, just lots and lots of sleep to be caught up as you lay there oblivious to the world and your family pop in to visit – even the press have popped in to take a few snaps, you are flavour of the month.

It’s nice not to worry about money isn’t it? Your better half holds your hand, every day, playing the songs you love and whispering how they love you. Phoebe has had a baby! Your cousin Joey turned 21 today; he will be in a prison cell before he makes 22. Aunt Monica had a heart bypass; uncle Chandler, he’s got that angina.

Orderlies’ stretch and work your muscles; your colostomy bag is pure as the driven snow. That job you hated, they got taken over, under new management, said they had to let you go. Something in your contract: seems your days off in absenteeism have made your productivity terminally ill.

And your eyes are healing nicely. Your Dr. said you couldn’t do it but you did; all those little vessels retracting and BMI back to perfect. Twinkle toes the Nurses’ call you, but no one is around to hear them. Your life partner, the one you love, the one you drove crazy with the fluctuating blood sugar emotions, now makes your best friend very happy. It was hard to look at you, watch you sleeping; they had to take comfort in someone.

Hey, uncle Chandler and his angina. I’m sorry. What? We are forgetting, you didn’t even know he was ill when you went under.

Well that’s you then, time to get up, wakey-wakey-eggs-and-bacey, an ice cube in your mouth and peace of mind. A healing rest untouched by stress in a tidy, empty room.

And on a good day, diabetes is not such a bad disease to have.

By Paul Cathcart, Author of, ‘Persona Non Grata with Diabetes.’

www.pngwd.com

Click here to purchase “Persona Non Grata with Diabetes” on Amazon (US).

Click here to purchase “Persona Non Grata with Diabetes” on Amazon (UK).

Diabetes Awareness?

On a good day, diabetes isn’t a bad disease to have – I say this all the time. On a bad day, when I’m so crazy, infuriated and angry about the slightest, next-to-nothing, when I’m ‘exploitative’ hating myself for finding a normal day so difficult and I just can’t get my sugar to come down; when I’m so scared my eye bleeds again and a world of opportunity threatening to be taken away from me; well then I’ll seriously consider swapping you my diabetes for something else, you take your pick.

 

We sit around these closed groups, shuttered off from prying, probably numbed and uninterested eyes, ebbing closer on folding wooden chairs, and it strikes me, that to read into a diabetes blog on a personal level, to commit to comment whilst disguising our truer self from scrutiny; we are more-or-less embedding ourselves into the world of Alcoholic’s Anonymous, with all inherent shame and inaccurate social conclusion.

Diabetes Awareness Week then, is that the solution? Depends on what the awareness is I suppose. Because when Diabetes Awareness stands for diagnosis, balloons popped, smiles and cheers; well that’s not my diabetes, and in turn that diabetes awareness inherits me shame. But then again, as I always say, ‘diabetes isn’t a bad disease to have – on a good day.’

*On a good day definition

We live in a time when I won’t have to wrestle a Tiger to the ground to feed my wife. I could probably even hobble to the shops for some fish sticks on an amputated foot. Also, with level sugar for a couple of day, I feel awesome.

 

 

 

Diabetes: diabetics make this disease what it is

I spend an awful lot of time reading the posts of fellow diabetics here on Facebook. To share how we feel intimately, then stand back and view from a global level; well things have been frantic this week as always; parents with their T1 children in hospital (the parents in my mind always suffer the worst); the divorces, there is only so much stress the diabetic mind can take; the loss of medical insurance, the DKA, the throwing a can of Coke on your husband (‪#‎brilliant‬), the group meeting and the HR departments unwilling to understand. BUT I SWEAR TO YOU – from the perspective of living with diabetes on a global level, we are doing okay. In terms of fighting the fight and living an optimistic life, we are winning. We hurt, we heal, we learn and we love. We always push on.

I had to leave the cinema half way through Transformers 4 because I kept having to push past everyone to get to the toilet so many times; I gave up in the end because I didn’t want to interrupt their film in the end. I only wanted to jump out of a window once, but I came on here and near complete strangers, who often feel the same way, talked me over it. I had a sugar of 19 (UK) and had to walk up a hill for half an hour with my eyes half shut, to pull me out of it. I had you there all along, even if you didn’t always agree.

So for the Air Hostesses, the engineers, the dads, the good guys and the bad: yeah we swore a few times and it’s often hard to understand when we are not face-to-face. But diabetes damn you; I tell you; on a good day it is not such a bad disease to have.

P

Diabetic Unity

I think of us as diabetic brothers and sisters, we share a bond that many married couples of ten years have yet to reach. Of course we don’t deserve each other, but I’m proud to be of your acquaintance.

Sharing a coffee in any café I see the lady before me play the ritual of prick-bleed-strip-test: we nod in accordance and smile a tip of the hat to the other man’s cake.

Testing for a hypo and I know this sleepy head pales in comparison to the parent of the child still too young for hypo awareness as tireless routine repeats itself every second hour, having to awaken and discomfort her child for her child’s sake.

I put up with the Pharmacist; never enough sugar test strips to meet my prescription and often an unprofessional glance of, ‘you’re using too many,’ yet my heart is busy going out to those with inefficient Health Care Plans and dependent on getting by with few.

My Dr. doesn’t know as much as she should. Type 1 or Type 2 we have all been in this waiting room too long and 1.5 Lada, don’t worry, eventually someone will figure it out, eventually…

Stopped at Customs, “Yes I have a letter supporting my requirement to carry needles onto this flight,” as did the couple on the flight before me, as do the two for the flight behind me. Can’t take sugar through with me, comes as little surprise. Get to Spain and “Sin Azúcar,” relieved as I am by international recognition of “light” cans.

Drip-fed supportive advice and force fed untrue media coverage, often hung on our shoulders and easily sold on our hopes, needs and fears. Expected to be grateful, I am not. I assure you I am not.

I’m going to the bathroom too much and I think of you Diabetes Insipidous. I hope to be a dad one day and I ponder the difficulty of Gestational Diabetes. I think I feel a little shaken as I write this down so time to check and feel satisfied / unsatisfied. I often worry for my eyes, I often worry for your feet, but back in the café we tip our hats in recognition of one another’s emotional fluctuation.

Saturday comes as it always does; supermarket tin to drop a coin and raise awareness beside a half-price special on a packet of biscuits.

Through this disease we triumph and fall with related spirits. I have your back my diabetic brothers and sisters. I hope you have mine. And remember, on a good day, diabetes is not such a bad disease to have.

By Paul Cathcart, Author of ‘Persona Non Grata with Diabetes’

Diabetes Eye-Screening Clinic

Today I opened a letter from the Diabetes Eye-Screening Clinic. I’m going to go blind.

The only thing holding in hysteria is fear. It’s over isn’t it? Please tell me it isn’t over. I can’t be over before I’ve even gotten anywhere, before I’ve even given up on myself. Everything once so promising has been taken, like a vicious knife attack but slow, far slower, couldn’t really twist it in more. “The first stages of Background Retinopathy.” black print on white paper, an accompanying leaflet listing all the ways it can go wrong from here. I can’t feel anything. I’m less than numb and unbalanced from the knees up. I guess this is the shock. I fold it back into the pile of faceless letters from the bank and hold onto Natasha for dear life, ‘It’s not even highlighted in red. It doesn’t even say urgent on the envelope.’ It’s been laying there for months now amongst a pile of loose bank letters. We stand together frozen, a nightmare where the scream does not come out. White letter and black text.
But how can this happen? I was there at the test; the woman was short and Spanish, she was apologising for the machine having being broken previously and this being a return visit. She put me at ease, told me I’d be fine when I told her how I was scared of eye tests, of how my mum now had glaucoma in the family history and that I was terrified of losing my sight; as my hands trembled.

She said from the first looks of photographs she had taken of the backs of my eyes, that there was nothing obviously wrong, no apparent damage; a couple of marks to be expected following near seventeen years of diabetes. Though nothing of obvious concern and some much needed reassurance these were yearly tests set directly to pick up any early warning signs of decay; so as to give the experts to whom these photographs would be sent much advanced notice. ‘Were they to find anything serious, they can treat a patient in advance with all the wonders of modern medicine and laser eye care therapy. Being able to eradicate it there and then,’ she said. Words taken and held onto like a comfort blanket.

But this letter doesn’t mention any of that; black text on white paper with no personal signature it reads I have the first stages of Background Retinopathy and the accompanying tissue-thin colour brochure states that one direction this may go in can be treated in some instances with laser eye care surgery: that this can work for a small percentage of some people with diabetes. Presenting next on profoundly colourful print another half dozen or so untreatable ways it’ll no doubt accelerate.

Back to the letter, they want to see me again in a year to track what route of deterioration my eyes have taken. A YEARS TIME before looking into possible treatments, if any and in the meantime I am to sit tight and it is most important I should keep my blood sugar(s) level. I can’t deal with today’s letter, it is again sealed, folded then stacked and shelved amongst the bottom end, two-thirds down a stack of white paper envelopes that I’ll never open.

Taken from my book, ‘Persona Non Grata with Diabetes.’ I hope you don’t mind me sharing. P

Diabetic Book Reviews, by real life sufferers of diabetes

I hope you don’t mind me sharing this. The Latest Diabetes Book Reviews are in and I must admit, I am incredibly proud. Thank you EVERYONE. P.s. I don’t especially enjoy being diabetic, but often it’s more than worth it to meet all of you. P
http://www.pngwd.com/readerreviews.html

“Thanks for writing the book about ‘me’!”

// Note from Author: The sentiment from Lisa is beautiful and exactly as I intended, the true purpose of the writing and the reason of my four and a half years sitting around coffee shops in Tunbridge Wells writing away.

Lisa Sullivan, 03 January 2014

 

Love it, I laugh in agreement, *****

I love this book. It is so true in everything. Best book I have read about diabetes, Great to read a book that was written by a fellow diabetic too.

Hanna W, 03 January 2014

 

Being diagnosed with diabetes is a sobering and frightening experience.

Learning from those who have dealt with the condition and successfully learned to manage it while leading healthy and productive lives is a good place to start. In this book, Persona Non Grata with Diabetes’, author Paul Cathcart provides such a guide. Highly recommended for those newly diagnosed as well as those who struggle with managing diabetes well after their initial diagnosis..

Robert Daniels, 03 January 2014

 

Real life with Diabetes – Telling it Like it Is.*****

Well done Paul Cathcart! Finally, someone has written a book on what it’s REALLY like to have diabetes. Most people think living with diabetes is fairly easy – eat, take medicine and off you go. Even medical professionals think along these lines. This book goes through the true ins and outs of the disease. I highly recommend this book to everyone.

Shelby Kae, 03 January 2014

 

Truthful and honest! .

Enjoyed reading and found comfort in the fact it was wrote by a diabetic ..
Im not a diabetic but I needed to gain real life feelings instead of just the text book info in order to understand how my son and dad feelon a daily basis .
Thankyou

Rachael K, 03 January 2014

 

Excellent book I would recommend!,*****

This is a book that is difficult to put down.Laugh out loud moments and desperation - the highs and lows of life made even harder when you have diabetes.

Judy Wolf, 26 December 2013

 

Superb and enlightening book,*****

Paul Cathcart’s from the heart novel, ‘Persona Non Grata With Diabetes’, is a must read for diabetics and also their loved ones. Having been diagnosed only earlier this year I personally felt it saved me years of confusion, trying to figure out what on earth was going on inside me. Although I was very lucky with doctors at the initial diagnosis, a few months on I had questions I didn’t even know I had or how to phrase if I did and Paul’s book has given me a lot of answers to those questions whilst also giving me a good chuckle. There were plenty of personal anecdotes in the book for which I could either identify with or were just very funny and/or touching, reminding anyone who reads it that a diabetic is a person not just a walking condition. It took me a while to read it simply because there was so much information to absorb but I’m glad I have. It has influenced my life for the better.

Perkimoth, 29 November 2013

Fantastic read growing up with type one diabetes,*****

As a mother of a 4 year old diabetic child I came a cross this book through a friend.
I really enjoyed it, it was funny, heart warming and made me really think of the struggles my son will go through as a adult with type one diabetes.
A really good read not just about diabetes but someone’s life struggles and over coming them.

Laura Stevens, 20 November 2013

Excellent account of living with diabetes,*****

Excellent read, find myself nodding & laughing at many of the things Mr Cathcart has put in this book as with being a type 1 diabetic I can certainly agree with his accounts of being diagnosed & also living with diabetes. Certainly not the usual text book book about living with diabetes. Brilliant x

Ange Erin, 8 November 2013

You really put it out there,

and gave me great insight on this disease from the child’s perspective. As a Mom of a T1D I will never understand how it feels–inside him. I can only watch, help as best I can, and hope. Thanks for having the courage to really ‘hang it all on the clothesline!’

P D Paladino, 8 November 2013

A true account of life with type 1 diabetes,*****

At last, a book about diabetes which deals with how we feel about our condition and which deals with the struggles and frustrations we face trying to balance diabetes with a ‘normal’ life. So much of this book resonated with my own experiences and I’m so grateful that Paul Cathcart has put pen to paper.
This book isn’t only a brilliant account of life with diabetes, it’s a brilliant autobiography. I’d highly recommend it to anyone, with or without any connection to diabetes. And the chapter about trying to pick up prescriptions had me in stitches!

J Acharjee, 28 October 2013

 

Finally a real account of life with Diabetes!,*****

In Persona Non Grata With Diabetes, Paul finally tells the truth. It’s about time! It’s no fun with this disease, and he brilliantly allows the reader in on his life, the ups and downs, ins and outs of live with a chronic illness that demands more and more from us every day. Brutally honest, his story could be my story. He hits the nail on the head with his depiction of surviving against all odds, and enlightens his reader with what it takes to survive. I recommend this book strongly for every diabetic, and for the families and friends of diabetics. Bravo Paul.

D Thomas, 12 October 2013

As a type one diabetic,

I have been reading books about diabetes my whole life and then being ultimately disappointed by my bland and boring purchase, how diabetes is portrayed as a non serious disease and at how ‘easy’ we have it compared to some other people. However, persona non grata with diabetes is a whole other sort of book. It leaves you wanting to turn the next page and before you know it you’ve been reading it for 3 hours…the book made me smile, laugh and even cry because its so true and honest. The things we put up with that other people say to us out of a lack of education and knowledge of diabetes is outstanding, and the worst thing is we put up with it when we feel like going crazy in our heads. I thoroughly enjoyed the book and finally there is a book that understands us diabetics. Thank you Paul, for writing the book that everyone out there has been waiting for.

Ruth Walsh, 12 October 2013

Thank you for writing this book,

a great read and as a mother to a type 1 childit was good to read a perspective of the life my child will have before him , it was good to get your perspective on life with diabetes , not just what you read on the websites about the condition… Thank you paul for writing a great book with the ups and downs to it all , we all take life for granted everyday … Again great read

Sarah Durow, 10 October 2013

T1 Honesty*****

I have to say after reading many books on Type 1 Diabetes. This made me smile as it was so very honest. So many emotions discussed and shared. Thank you Paul for wearing your heart on your sleeve and bearing all.

Diabetes Power, 9 October 2013

 

True account of how we really feel on a daily basis*****

What a fantastic funny, sad, true account of diabetes!! Can relate well to alot of the facts in this book! A very simple straight to the point and easy read on how we can struggle on a daily basis! A must read for Diabetics and non diabetics. Have recommended this book and will continue to recommend it. I have only been diagnosed since dec 2012 so im still fairly new to everything and trying to find my own way of dealing with it etc so this book has defo helped me and gave me some pointers :) very well done Paul! Wont be the last time I read this book and thank you!

Big Smile, 9 October 2013

 

Thank you for letting me read your book,*****

it was definitely a story that needed to be told.It gave me insight into how my child feels/will feel with Type 1 Diabetes. More people need to tell their story – it seems you are among some secret society, very hush hush and no one realises the truth and the public need to know.

Type 1 Diabetes is a chronic disease, 24/7 and no weekends off or holidays, as a parent I cannot remember the last night that I slept for a full night, my child has this, like you, to deal with…for the rest of her life. Too much education is lacking in the NHS, DWP, Schools, Joe public etc….. I really feel my child is winging it!

It shouldn’t be like this/it shouldn’t have been like this for you or anyone ever! Why are these so called experts being paid XXXXXX to tell you nothing and give you no advice whatsoever?? I smiled. I cried. I feel angry for you. I so… wanted to help you. I am glad that you have found your own way to deal with this. You have really helped others by putting this out there for everyone to read and I shall certainly be buying a copy for relatives/friends that think Diabetes is easy, some stupid remark by them and you just shut up and don’t say anything.

Well now is the time!!

Best health and wishes for you xx

Robyn Selley, 9 October 2013

Fantastic open and honest *****

account of what life really is like for us folks with type 1 diabetes! A must read for anyone with the condition or anyone who wants a real understanding of living a life as a diabetic! Excellent!!

Miss RJ Seaton, 8 October 2013

Best Book EVER on what it is like living with Diabetes! *****

I finished the book and all I can say is, “THANK YOU” and “WOW”.  Your stuggles mirror my own…….in five days you can not believe how many people I have told about this book!  I have quoted you and watched as others go “YEAH….THAT IS SO RIGHT ON!”  I can guarantee when this hits paper back…..I am buying several and I am going to give them to all the d specialists and my personal doctor..some with some quotes UNDERLINED and HIGHLIGHTED for them!  I also train diabetic alert dogs and I will carry a copy of the book to hand to those that make snide rude comments about YOU DONT LOOK DISABLED!   A smile and a read this and then call me we will chat!

Thank you for bearing your soul to the world and know that YOU ARE NOT ALONE EITHER!

KC Owens, 29 August 2013

 

Thank you so much for writing this book!

As the parent of a child with T1D I understand so much more now, he’s only 5 and was dx at 18months old so he cannot describe what its like compared to what its supposed to be like. I feel like I can communicate and understand better with him now. I will keep it forever and read it many times over I am sure! I thank you for your candid and personal approach to writing this book!

Elaine Marion, 19 September 2013

Brillant book recommended, *****

Wonderful book says it how it is. laugh out load. even got the Drs at work reading it (i work on a childrens ward) and they loved it.

Alison, 15 September 2013

 

I found it fascinating,

It is strange to see someone describe symptoms and worries so similarly to those you personally have. I spend a lot of time trying to explain to friends and colleagues what it is like to be diabetic but seeing someone else saying similar words was eye opening. Although having been medically a T1 for 3 years I have only just gone on to insulin so I am only now having to worry about hypos, carb counting and the like. Your book has given me lots to ponder and shown me that while lots of people want to give advice, they are not me, I am different to every other diabetic and that it is me at the controls and I am responsible for where I end up. Well done, looking onward to part 2.

Greg Hawkins, 12 September 2013

 

Love this book,

It’s good to read something written by a diabetic who goes through the same day to day struggles as myself and others. Never a truer word spoken.

Shelley Scott, 8 September 2013

 

Much needed, *****

“What a world it would be if we all decided to tell the truth of Diabetes and got everyone else to listen.

Paul Cathcart has to courage to say, write, what many of us are thinking, what many have gone through, what many feel- but may not be able to put it all done- or are too scared to. Finally, a book and an author that is not afraid to tell the truth about Diabetes. Finally- not a book about how to take care of Diabetes, how to “handle Diabetes” but a real life account that many can relate to. People without Diabetes NEED to read this- the world needs to understand that we are more than a number and a disease that it isn’t just a simple numbers game because we are people at the end of the day. As a fellow person living Diabetes, I could relate to so much of this, and I am forever grateful that Cathcart has had the courage to write this down- and to also inspire me to write it all as well. This is a must read- and I will be forever recommending this book to all I know. I hope to see it on the bookshelves of the states soon.”

Mindy, 21 September 2013

 

Blown away

It’s almost like you took my own thoughts and put them on paper. I am so happy & relieved to find someone who understands and deals with this disease like myself. Most people closest to me don’t understand the depression, anxiety and emotional side of diabetes. I am hoping a copy of the book may help my friends and family understand why I do the things I do.

Mike Graham, 29 August 2013

Paul Cathcart’s memoir, *****

delves into the depths of the diabetic mind;the guilt, the pain and the frustrations of trying to live in our modern world with diabetes.

As a fellow diabetic of many years, I could often relate to Cathcart’s internal struggles within the memoir from having others, including doctors, not understand the immense inner turmoil a high or low blood sugar can cause to eventually losing yourself completely to your disease.

From empathizing to the embarrassment of constant bathroom breaks at work to not being able to sleep at night due to highs or fear of having a seizure, it becomes somewhat therapeutic to read and be able to understand that so many others are going through the same hardships when it comes to diabetes, and in Cathcart’s case, to see that others are eventually reaching a middle-ground in their never-ending battle against this diease.

Diabetes is not any easy chronic illness to live with, and that is certainly exemplified through Cathcart’s memoir. If anything, this true life story will either give you a better understanding of the life of a diabetic – the agonizing pain felt and how it can completely change a person – or as a fellow diabetic it may offer you a sense of common reality shared through experiences.

Becca Clark, 25 August 2013

A brutally honest account,

of one man’s battle with diabetes and the roller coaster that he is forced to ride without the benefit of being strapped in. It is a tale told by a gifted writer full of meaningful sound and fury. Anyone with diabetes, and anyone lucky enough to not have it, will be able to relate to Paul Cathcart’s engagingautobiographabetes!

Diabetes Duo, 23 August 2013

In Persona Non Grata With Diabetes,

Paul Cathcart continues the literary tradition of John Osborne with his tale of an angry young diabetic.  In often Joycean prose, he describes his childhood on the brutal streets of Glasgow and his struggles to manage his blood sugar.  We follow him as he ricochets between hyper- and hypoglycemia, taking more and more insulin to control the highs, then devouring chips and sodas to cope with the resulting low, bouncing between depression and fury.  An engaging story that should be read by anyone who believes managing diabetes is easy.

Mary Dexter, 22 August 2013

 

So far the only book

I have enjoyed about diabetes is ”Persona Non Grata with Diabetes” by Paul Cathcart. It is funny, honest, and heartfelt, stop over and say hi to him.

Meredith Balogh, 21 August 2013

Best diabetic read ever - *****

Finally a book about being diabetic that isn’t patronising, doesnt moralise and tells it like it is. I read this book in one go. I shared so many feelings, experiences and opinions of being a type 1 D I went through the whole spectrum of emotions as I read it.

I recognised my own denial and anger and my own breakthrough to acceptance when meeting the right team. Maybe it’s like love, all a question of timing and meeting the right people at the right time? For me, after years in a diabetic wilderness, it was connecting with a team who made me feel cared for. This should be compulsory reading for all diabetic consultants and diabetes specialist nurses.

We could probably all write our own versions of this book, they would probably all be equally as powerful but I thank Paul for having the courage to actually do it. Definitely the best diabetic read ever.

CJ, 14 August 2013

 

Trainspotting on Insulin, ****

I bought this to try and understand the emotional impact of diabetes.

My son is 3 years down the road since type 1 came into our lives and is still a young child. I wanted to prepare myself for the tough years which lie ahead and to try to understand how he may feel about his diabetes in the years ahead.

This book would make a great movie – it reads somewhat like a film script and had me interested and fascinated from the word go. The Authors’ difficult early years in Glasgow are depicted vividly as he struggles to vote (cope?) with his diagnosis and living the life of a young man out drinking and partying.

Miss Lilly, 10th august 2013

 

As the parent of a Type 1D, ****

it is important that we can “get inside” our children’s heads and try to put ourselves in their shoes.  Paul’s book gives a no hole barred look at what a person with this disease feels, struggles with and can accomplish in life!  I appreciate him, our friendship and his view on T1  4 Stars from me for sure!

Cathy Dow, 09 August 2013

 

A real life story that reads like a novel,*****

Persona Non Grata With Diabetes is a candid reflection on living with an illness. An illness which, on the surface, seems manageable and less serious than some others, but as any type 1 diabetic (including myself) will tell you – there is plenty more than meets the eye.

Cathcart takes us into his world, from a difficult childhood growing up in a rough area of Glasgow, through his teenage partying years, on to adulthood riddled with health and personal problems. With every step we feel his frustration as he struggles to deal with his diabetes without proper care and guidance, from clueless health professionals to unsympathetic bosses. We see how diabetes truly effects every aspect of one’s life, and how most of us strive to be a “good diabetic” but often times fail due to lack of information and communication with the people we ought to trust -our doctors.

Cathcart pulls no punches – his book reveals all. Although this is not a “how-to” book, and is devoid of medical jargon and complex explanations of diabetes (which makes it easy to read even for non-diabetics, uninterested in the minute details of the illness), it conveys an important message: diabetes is NOT an easy illness to live with. It is a constant struggle for most of us, and I can’t think of any diabetic who has not been through similar ordeals in their diabetic lives (at least in the beginning stages of living with this illness). I encourage everyone – whether diabetic or not – to read this heartfelt and gripping account of a person struggling to live a normal life with an incurable disease.

J. Wozniak, 01August 2013

 

I have never read something that touched upon the various different emotions,

and struggles, along with the strides, we each make on a regular basis. I recommend this for anyone struggling with their diagnosis and coping of any type of diabetes! Very insightful – we are not alone.

Chrissy Gorman, 29 July 2013

 

I felt that was my story you’d written,

subsequent to my diabetes diagnosis! Felt each word that I read & could totally relate :)

Sarah Fazli, 17 July 2013 

Best book I’ve read

and so many things to say “snap” about! A lot of the book is like reading my own diary… if I had bothered to write one that is :)

David Hansford, 05 July 2013

 

Simply brilliant. No truer account of life with diabetes. *****

The best diabetes life account ever. It has totally changed the way I am looking at my own diabetes. The author is a true inspiration. That said you don’t need to be diabetic to enjoy the book. The three bears chapter is probably the best description of diabetes written within any book / blog.

Olly, 28 May 2013

 

No holds barred account of living with diabetes. ****

Paul Cathcart tells it exactly like it is in this brutally honest account of his life before and after being diagnosed with type 1 diabetes. I found it both sad and funny, and definitely thought-provoking. I cringed at the descriptions of his encounters with Healthcare Professionals and sensed that he felt alone, unsupported and let down by the NHS. Paul has strong opinions and is openly cynical about the Pharmaceutical Industry. Although not everyone will agree with him I personally found his thoughts and ideas interesting. Many people, including Health Professionals, fail to understand how difficult diabetes can be to live with. They wonder why people with diabetes don’t just ‘behave themselves’, and don’t appreciate how much people struggle to gain control of their health. I recommend this book for those people in particular.

Rebecca L Owen, 22 May 2013

 

Wonderful. Truly enlightening!*****

At last someone who fully understands what it is like and what we go through. This has helped me enormously in understanding my diabetic son. To think for a while I naively assumed all the mood swings were typical teenage years not for one minute did I think it was his diabetes making him emotional and more unwell.

Bear Because, 22 April 2013

 

Yes it was very good

I liked it a lot and had some good laughs out of it a great read and I would recommend it to all my friends to read!

Stephanie Knight, 8 October 2013

 

I really appreciated the first hand experience

and point of view of a diabetic. You have expressed the anger, resentment, and frustration that I feel constantly. It is such a non stop battle and struggle.

Jamie Todd, 8 October 2013

 

I have enjoyed reading this book,

and its nice to know that someone else is going through the same. I would highly recommend this book to fellow Diabetics. It is a good read.

Irene Nolan, 8 October 2013

 

As a Diabetic for 23 years,

i have read many articles, books etc on the subject many of them very similar in content, but i found this book very informative and interesting, well worth looking into for yourselves if you haven’t already, excellent.

Mark Everton Jones, 8 October 2013

 

Persona non grata with diabetes, by Paul Cathcart

http://www.pngwd.com/readerreviews.html

Diabetes, FAQ

What is diabetes?

That’s the question people ask when they don’t particularly care. It’s a lazy question, posed to you a billion times without purpose and answered sans concern.  Resulting in the same outcome, never benefitting you the diabetic. Well the answer is that the person asking doesn’t want an answer. It’s a media click and a bosses’ quip.

How do you care for your diabetes?

Questions, for questions sake, by the lazy. ‘Why don’t you know the answer, you are the diabetic. Well I suppose it’s not all your fault, but until you get better you are not of equality to the rest of us.’ Unless they care, they really don’t care.

Diabetes, what should I eat?

As an adult, it’s entirely up to you really. It depends on how much insulin you are happy pumping into your body on a daily basis and how happy you are near collapsing in shopping centres as all the meds kick your ass in one go. As the parent of a child with diabetes (not me you), my God my heart goes out to you and I do not know for the life of me why you are not getting better support and free prescriptions at least till they reach the age of 16. Other than you live in a country where your Government give more love to Big Pharma and Private Insurance than they do their own next generation of population.

When is the cure for diabetes coming?

That’s the question that steels hope from our hearts and money from our pockets. Buy into this idea, partake in that event: pilfering away at our concerns for loved ones on research and development grants (back handers) but never delivering the fundamental solutions to a system holding us down. How can a pack of blood sugar test strips cost more than a PAYG (US Burner) mobile phone? That’s a better question. Why hasn’t the 10’s and 100’s of millions of charitable cure money, donated by those who can least afford it each year, found a simple and cheap solution to this?  And when they do find the worlds’ most profitable cure for the worlds’ most profitable disease, who shares in the spoils? Hope is very profitable, I think is the answer to this question.

I think this has all been covered a million times. Where we really have to start looking is into the emotional state of the diabetic, particularly in regards to the emotional trauma of persistent fluctuating blood sugar, hormones and fear of what’s ahead. Bear in mind that insulin is a hormone and as such, we as diabetics do suffer a hormonal imbalance, which infects into every instant of our lives, from personal, private and professional. Anyway, I have written a book about it and how we push on.

Paul Cathcart, Author of ‘Persona Non Grata with Diabetes.’ Google it! (Also check out our diabetes group Diabetes Anxiety) P

P.s. You are not alone my diabetic brothers and sisters.

www.pngwd.com

Diabetes Anxiety Group on Facebook

 

 

 

 

 

 

 

Official Press Release

FOR IMMEDIATE RELEASE

Living with Diabetes,You Are Not Alone

Explained with Honest Wit and

Real World Experiences

“I felt as though I was dying faster than I was living. I figured things out and I made myself better. I wrote this book for you,” Paul Cathcart.

January 07, 2014:  Paul Cathcart is diabetic, yes, but it is how he handles the disease and who he is that is quite individual among 371,000,000 fellow sufferers; a population larger than the USA screaming in silence, ubiquitously blamed by others as being overweight, lazy or lack the discipline for dietary structure.  The disease can strike anyone.

With a writing style extraordinarily unique, Cathcart streams his consciousness without hesitation onto the pages of his book, Persona Non Grata with Diabetes, named with his style of language of a quick wit and a sharp tongue, brewed from his upbringing in Glasgow, Scotland.

Raised in a working class family by a single mother, Cathcart created the picture that diabetes can and does happen to “normal,” everyday people, he smashed down the door to shed some light on what it means to live with the disease.

“The work is a head in my hands reflection and looking forward of my life with diabetes,” said the Author during an interview with Pacific Book Review.  He continued, “What led me to where I stand at the moment I decided to write this book (seventeen years trial and blood sugar error, read as emotional turmoil lost in a bigger world) and through that four year period to completion.”

Interestingly, when asked who outside his family supported him, he replied, “It took some time to get to the development stage, where I was able to reach out and ask the opinions of fellow diabetics, on whether they felt the same. Ultimately their feedback was unanimous, we are all screaming inside with this condition in one-way or another. But until then and outside of that I wish I had better things to say.”

“Say” he does. Cathcart keeps his humour and welcomes readers, both diabetic and non-diabetic, with the understanding that you don’t have to face life’s struggles alone.

Real diabetic, reader reviews have flooded in, praising the, Bravery of the Author” for Laugh out loud moments of desperation” and Finally a book about diabetes that isnt patronising, doesnt moralise and tells it like it is.

This book makes for an especially good read for those struggling with the condition but it also serves as a good educational piece for those looking to understand a loved one.

ABOUT THE AUTHOR: An everyday diabetic of 20 years experience; Cathcart has come to understand his diabetes as a state-of-being rather than its medical definition. With his core belief, that only through a rightful understanding can we accept a just responsibility to our shared condition.

Author: Paul Cathcart

Author

 

Title: Persona Non Grata with Diabetes

Free chapters: http://www.pngwd.com/

Author:   Paul Cathcart

Publisher:   Paul Cathcart

ISBN:  9780957689947

Pages:  424, Paperback/Kindle

Genre:  Health & Fitness / Diseases / Diabetes